Funding strengthens support for people living with MND

May 2026

Care

People with motor neurone disease (MND) in Swindon will continue to receive dedicated, compassionate support thanks to a four-year funding commitment from the MND Association, delivered in partnership with Prospect Hospice.

The funding supports a dedicated MND Care Co-ordinator role, which provides people with MND and their families with a consistent, trusted point of contact to help them navigate a rapidly changing and complex condition.

MND Care Co-ordinators work alongside individuals and their families to understand what matters most to them and brings professionals and services together, so people get the right support, where and when they need it.

In Swindon, the role is delivered in partnership with Prospect Hospice and is held by Dorinda Moffatt. Working closely with people affected by MND, their carers and a wide range of professionals across the community, Dorinda helps people access support closer to home and enables earlier engagement with hospice services, improving understanding of the holistic care available and supporting timely planning. With support from an assistant, Dorinda also helps ensure continuity of support, even as circumstances change.

She said: “I’m extremely proud to be working with the MND Association. Both organisations share a deep commitment to putting patients and families at the heart of everything we do, and that shared purpose makes this partnership special.

“I have the privilege of supporting patients, families and carers as they face an incredibly challenging diagnosis. Being able to be a voice for people when the disease can take away their ability to speak for themselves is one of the most important parts of my role.

“I’m so grateful to be trusted with this, and to be able to continue ensuring their experiences are heard and their needs are met and understood.”

Sally Hughes, Director of Services and Partnerships at the MND Association, said:  “Our MND Care Co-ordinator roles, which are funded by the MND Association and delivered through local partners, provide wraparound support for people living with this devastating disease, offering a trusted point of contact for individuals and families as their needs change.”

Through its national MND co-ordinator programme, the MND Association funds dedicated roles across the UK to improve co-ordination, equity of access and the experience of care for people affected by MND.

About Prospect Hospice

Prospect Hospice is a charity providing palliative and end of life care, 24 hours a day, seven days a week. Rated ‘Outstanding’ by the Care Quality Commission, the hospice provides all services free of charge thanks to the generosity of the community, which raises 84% of the £10.6 million needed each year. 

Care is tailored to each individual and delivered in a variety of ways. Specialist teams provide clinical, emotional and practical support at the hospice in Wroughton, in people’s homes and across the community. 

Founded in 1980, the hospice serves a population of more than 330,000 people in Swindon and north-east Wiltshire, including Royal Wootton Bassett, Marlborough and Pewsey, as well as Lechlade and Fairford in Gloucestershire. 

Prospect Hospice Communications Team. 

Tel: 01793 813355 

Email: communications@prospect-hospice.net  

Website: prospect-hospice.net 

Registered Charity No 280093 

About the MND Association

Every day we’re here for people affected by Motor Neurone Disease. A diagnosis of MND brings home the preciousness of every day. So we do all we can to make every day count.

We bring understanding and guidance. We deliver practical and financial support. We raise awareness and campaign for better care. We’re not just here for now – as the UK’s leading charity funder of MND research, we’re striving for breakthroughs to develop new treatments and, ultimately, a cure.

MND moves fast. It takes away time, it takes away independence and it has no cure. Every piece of support, every research project, every pound raised, every kind word, and every day lived well, matters.

About motor neurone disease

Motor neurone disease (MND) is a fatal, rapidly progressing neurological disease. Today six people will be diagnosed with MND, and six people will die from the disease. There is no cure.

MND attacks and damages the nerves which take messages to the muscles. Within months a person may lose their voice, their movement and, ultimately, their ability to breathe. Some people experience changes in thinking and behaviour. MND doesn’t affect sight, hearing or touch.

A third of people die within a year of diagnosis, and more than half within two years. It affects people from all backgrounds, of all ages although MND is more prevalent in men, and a person’s risk increases as they get older.

More than 5,000 people in the UK are living with MND at any one time.

MND Association Communications Team.

Tel: 01604 611897 

Email: communications@mndassociation.org 

Website: mndassociation.org 

Registered Charity No 294354 

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