Dedicated support for those with

Motor neurone disease (MND)

Are you, or someone you know, living with motor neurone disease (MND)?

 If you, or someone you know is living with Motor Neurone Disease (MND), our experts are here to support you.

  • Prospect Hospice has teamed up with the MND Association to ensure all people living with MND with a Swindon GP have the support they need – thanks to specialists clinical professionals working with the wider community.
  • Their role is to make sure your care is well-coordinated and that you are well-supported to the end of life.
  • This advanced service offers specialist information, sign-posting, support and guidance from diagnosis and throughout your illness.

So what can we help with?

  • Our MND specialists work collaboratively with the Consultant Neurologist in the dedicated MND clinic at the Great Western Hospital (GWH) and across the community and can visit you in your own home.
  • We coordinate a bimonthly MND multidisciplinary team meeting and work closely with all members to provide a tailored individually focused service
  • As we are based at Prospect Hospice we are able to utilise all our hospice services, including the family support team, Therapy and Clinical Nurse Specialists

We can offer:

  • Information about MND, including information for you and your family to read in your own time
  • Advice and support with advance care planning
  • Referral to wider, more holistic Prospect Hospice support, including emotional support, complementary therapy and educational courses
  • Information and advice on palliative care
  • Advice, education and support for health care professionals in the hospital, community, care agencies and nursing homes
  • Referrals to community teams who can offer further specialist advice and support
  • Benefits information
  • Access to Motor Neurone Disease Association support
Kerri and Dorinda

Meet the prospect team:

  • Dorinda Moffatt: MND and Neurorespiratory Specialist Practitioner
  • Kerri Parkes: MND Health Care Assistant
  • You can also talk to one of the members of the Clinical administrative team, including Sam Bennetta who is the Administrative Team Leader, or a member of her team.

The team feel very privileged to be working with out MND community:

Dorinda: ‘’I understand both personally and professionally that to be given a diagnosis of MND is devastating not only for the person but also their loved ones. That is why it is so important to make each and every day count and ensure that no one in Swindon will face MND alone”

Kerri says: “I feel very privileged to be the MND HCA for Swindon, I strive to give the best possible care for our patients and their families at diagnosis and throughout their journey. It feels as though you are part of people’s family. I value every day and will continue to give my best to the MND patients in Swindon needing our care and support”.

The Clinical Administration Team: includes Sam, Caroline, Donna, Kathy and Nicky. The team support all the clinical teams across the hospice with their admin, and for the MND team they process referrals, arrange the multi-disciplinary meetings which take place every other month – which includes attending the meeting to take in-depth notes.

Our fabulous Clinical Admin’ Team.

They also speak to patients and their families when the clinicians are not available, chasing up their prescriptions, contacting their GP regarding any queries, booking appointments, taking messages and signposting services.

The team are far from ‘just admin’ they provide lots of specialist expert support to all our clinical teams and ensure they can concentrate on providing excellent patient care.

Working with Great Western Hospital

Kerri, Dr Mazzucco and Dorinda.

Prospect Hospice is proud to be working alongside our colleagues at the Great Western Hospital, including Consultant Neurologist Dr Mazzucco and her team, to provide pioneering care across Swindon.

This powerful partnership brings together a wealth of expertise, ensuring patients with MND have access to the best possible treatment and a more comprehensive support network.

Get in touch

Other support you may find useful

MND Connect

The MND Connect team offers information and support on all aspects of motor neurone disease (MND), including symptom control, practical management, improving quality of life, clinical research and signposting to other organisations.

The advice line is available Monday to Friday, 9am to 5pm and 7pm to 10:30pm.

Call on: 0808 802 6262
Email: mndconnect@mndassociation.org

Find out more about this service here.